A lovely afternoon spent at the beach with wonderful friends!
Today, we were invited to celebrate our friends’ twins’ birthdays. Archie and Ethan are little miracle babies. Their mum and dad endured a difficult pregnancy, full of uncertainties – they even faced the possibility they could lose one or both babies. These babies were covered in prayer by many people and God brought these precious lives through various life-saving interventions, out of danger, and they were delivered safely a few weeks early – tiny, but fighting and stronger than expected. After only one week, mum and new twin babies were allowed home. How amazing is God?! He continues to answer prayer so mightily! Today we got to celebrate their first birthday and thank God for their lives.
Asa was given this adorable little outfit by his great Auntie Sarah. I love the slogan, ‘Perfect Little Person’. People may look at our baby and see a chromosome disorder, but we look and see Asa – our gorgeous, funny, happy little boy. He isn’t perfect because we all have sin in our life, but he is perfectly ours, perfectly formed and perfectly loved by a Creator God who doesn’t make mistakes.
Asa loved watching the other children bouncing away.
Evie is Archie and Ethan’s big sister – she is almost three. I’ve heard it said that ‘friends don’t count chromosomes’ – Evie certaintly isn’t bothered as she cuddles Asa and plants a gentle kiss on his forhead!
Today Asa has been discharged from the feeding clinic! I am thrilled as it means Asa is eating ‘normally’ and the speech and language therapist and dietician have no concerns over his eating or dietary management. Considering his gross motor development stage is around 4-5 months (due primarily to him not being able to sit up unaided), he is able to eat baby food that is age appropriate – so he is currently 10 months old and he is eating baby jars for a 10 month old. The dietician said she would not have expected this and said Asa is doing very well. There are still some challenges with Asa’s feeding, such as him tolerating larger lumps and occasional gagging and almost choking, which I hope will improve with time. We have a few recommendations for Asa to be going on with:
– Doidy cup for drinking (an open slanted cup)
– Lateral placement (i.e. Directing the spoon to alternative sides of Asa’s mouth (so that he learns to chew properly)
– Continue to offer a range of textures and tastes
– Offer ‘bite and disolve’ finger food, such as Organix goodies ‘toddler crisps’
– And finally, my least favourite: messy food play. Eww, gross! (I promise to share a few photos, one day! Please hold me to it!!)
A good friend will often encourage you at times when it might be most needed. Or even just write you a random note for no reason. This evening, I found this post-it note on one of my kitchen units. Thank you Coral, for your encouragement and friendship!