This morning we had Asa’s audiology Multi-Agency Planning (MAP) meeting at UHW. After a stressful time stuck in traffic and trying to park (one of the car parks was closed and it was absolute chaos – I was in tears!), I took Asa in to the hospital while Jon tried to park. I didn’t think he would be able to join me, but two minutes before we were called in, he arrived – phew!
I was a little nervous, as you might expect from me(!). This was our first MAP and it was all so new to us. Having Jon there with Asa and I was such a blessing. He is such a strength to me, a calming influence – my pebble. (I once called him my rock, and he replied that he didn’t think that was the case, and that he was more like a pebble than a rock, so it has become our little joke!).
We met with the hearing doctor, speech therapist, teacher for the hearing impaired and two audiologists. Most of the people we had already met and they were so friendly and welcoming. We discussed Asa’s hearing, whether he is wearing the softband regularly, what sounds he was making, the use of Makaton and any concerns or questions. Also Cath, the teacher, gave her report. At the moment, Asa’s favourite (read: only!) sounds (other than crying, giggling and wind!) are the ‘raspberry’ and a long vowel, ‘ahhh’. Everyone seemed pleased that Asa was making small progress with his sounds and Lowri, the speech therapist, even thought she heard a ‘b’ sound from Asa that we’d never picked up before. Subtle sounds aren’t easy for us amateurs to pick up on!
We asked Dr Roberts, the hearing doctor, whether Asa might now be suitable for conventional behind the ear hearing aids. Upon examination we were informed that Asa’s ears are still too small and so it’s not feasible. I must admit I was rather disappointed. The softband does help Asa’s hearing, but it’s hard work – it gives quite a lot of feedback when knocked or rubbed, especially if Asa is on the floor or in his highchair. I have to adjust it regularly as sometimes Asa pulls it, or it slips out of position. He also, somehow, manages to turn it off on occasions! But for now, it is the softband or nothing, and as we want to help Asa as much as we can, we’ll continue with it until a time when Asa’s ears are big enough for the alternatives.
The doctor suggested we do an impromptu hearing test because Asa was sat up with minimal support. Off we trotted to the testing room. I’m glad I didn’t know that this test was on the cards as I would probably have been very nervous and I’d have worried about it the night before! Asa sat on my knee and the audiologists looked for a response from Asa to show that he had heard a variety of sounds. When he heard a sound, he was quite consistent in his response – he stilled, eyes widened and if he liked the sound he would smile and move his feet. He seems to prefer high pitch noises such as ‘sh’ and ‘s’ and he smiled consistently upon hearing these type of noises.
The second test the audiologists did was a tympanometry – a test to see how freely the ear drum vibrates to conduct sound to the inner ear. Asa had one in September which showed ‘glue ear’ in both ears, resulting in a moderate hearing loss. Today’s test showed one ear ‘glue ear’ as expected, whilst the other ear showed some ear drum movement which implies there is less ‘glue ear’ than a few months ago. We know that ‘glue ear’ fluctuates (i.e. can get worse and improve throughout the year), but we also know we have a healing God! We’re praying the ‘glue ear’ gets less and less over the coming months and will remain that way!
We went back to the meeting room to discuss the results. Today Asa heard sounds at 45 decibels, wearing the softband. We were thrilled with this! ‘Normal’ speech level is around 50 to 55 decibels, so this test shows that Asa is probably hearing a very good range of different sounds needed for speech. It is interesting that Asa responded so well to the higher pitched ‘soft’ sounds such as ‘sh’ because previously the audiologists thought that this was the pitch of hearing he most struggled with. We are praising God for such a good hearing test today.
If you are a Christian reading this blog and pray to God, then please join us in praying for Asa’s hearing, that the ‘glue ear’ would decrease and that his hearing would improve in order to develop good speech.
Some photos of Asa enjoying his tea later on that day…